This site is not the association. US crisis calls: pwsausa.org · 941-312-0400. We do not answer that phone.
Satiety is delayed or incomplete. Miller's phase 3 had a median onset of 8 years (often 5 to 13). Some adults later reach phase 4 and can feel full. Most do not. A 2025 US drug approval does not replace food locks.
Thinking about food can take up a lot of the day. Sneaking is common and is not a character issue. People whose weight is under control, after a large binge, are the group gastric alerts keep naming.
{comic_thumb("en", "s3", "Comic: empty plate, locked trash, locked car")}VYKAT XR is the first US drug indicated for hyperphagia in PWS, from age 4. It needs a clinician who knows this syndrome. Carbetocin missed every endpoint in a 175-person phase 3 trial and development stopped.